Genetic testing is allowing us to determine more and more information about the health and characteristics of our babies while they are still in their mothers' wombs. With this heightened level of awareness and power, we have to ask ourselves some pretty tough ethical questions:
I attended an interesting film and discussion at the Bell Museum last week that focused on many of these issues.
Who's Afraid of Designer Babies? is a documentary mostly following several Australian families grappling with a wide array of genetic issues, from crippling genetic illnesses in their children to more frivolous interest in selecting the sex of their children.
While the discussion was very intelligent and not overly polarized I can say that we were far from a consensus on many of these issues. These are complex issues that we will have to keep hashing out as the technology and social mores change. Haven't formed an opinion yet? Read below for more information.
Genetic Testing & Screening at the University of Minnesota's Center for Bioethics - This is a great resource on the basic questions of ethics that come up around genetic testing.
Genetics and Public Policy Center - "The Genetics and Public Policy Center is a source of accurate and trusted information about public policy related to human genetic technologies and is supported at the Berman Bioethics Institute of Johns Hopkins University by The Pew Charitable Trusts." This group does allot of work in assessing public opinion on these issues.
The US President's Council on Bioethics - This group advises the president on the science and ethical issues behind policy and regulation of biological activities. In the recent past this group has taken a more conservative focus, with President Bush firing several of the more liberal members of the group who actively criticized his position on Stem-cells.